ICU delirium is a temporary state of confusion that can happen to people who are critically ill and being treated in the Intensive Care Unit (ICU). It can cause someone to feel disoriented, have trouble thinking clearly, become very sleepy or agitated, and sometimes see or hear things that aren’t real (hallucinations). However, these memories will stick with the person, and they will remember them as "real", even if they did not occur in real life. It is important to acknowledge and understand that this is normal, and listen with grace. These are known as false memories, but are very real to the patient.Icu delirium can come on suddenly and can be scary for both the patient and their loved ones.
Post-Intensive Care Syndrome (PICS) is a collection of physical, mental, and emotional problems that can develop after a person has been critically ill and treated in the intensive care unit (ICU). These problems may include muscle weakness, trouble thinking clearly, memory issues, anxiety, depression, or post-traumatic stress. PICS can affect people of all ages and may last for weeks, months, or even longer after leaving the ICU. Family members of ICU patients can also experience emotional stress and trauma, sometimes referred to as PICS-F. Early recognition and support through medical care, rehabilitation, and counseling can help with recovery.
Most studies show that with ECMO specifically, the most seen cognitive effect was the stress from the trauma or event. This can appear long term as PTSD, or Post-Traumatic-Stress-Disorder. This can appear in several different ways, from specific triggers related to the event, needing closure, random anxiety, and panic attacks. Every situation is different, but overall most patients will experience some form of anxiety, depression, or PTSD from being on ECMO. It is critical to find mental health help, whether this is support groups, therapy, or even connecting with someone who has been through a similar experience. Make sure to ask your doctor for a list of mental health professionals who can guide you to getting your mind on the right path- and being able to listen when you need someone.
This information, these studies, your journey- it is ALL overwhelming. It is normal to feel scared, confused, and like it is hard to see hope for the future. Please know that while your journey is specific to you- there are others out there who have been through similar ordeals, and are feeling alot of the same emotions. You will find more on this in the resources page, but the most important thing to do after undergoing a traumatic medical experience is to seek therapy not only for your body- but for your mind as well.